Thank you for joining the Rescue 7 family. Welcome to our community, you’re not alone.
Rescue 7 exists to support under-resourced patients and families participate in clinical studies and receive long-term care. Our urgent call to action is for your help in accomplishing this service for patients who need it most. Patients and families can’t afford to wait, and we’re happy you’re here to learn more and lend a hand.
We are urgently fundraising to develop our patient headquarters which will provide cost-free housing, meals, and transportation to patients and families traveling for treatment. Our goal is to offer this service to patients by January, 2025.
With our mission always in mind, we offer solutions for two pieces of the patient and caregiver journey. We will soon launch our patient headquarters to completely remove the burden of housing, transportation, and meals for patients and families traveling to receive treatment. To help us achieve this goal, please consider a generous donation. Learn more about how you can make impact and donate by clicking here.
Second, we support nonprofit advocacy groups with fundraising activities and patient community events rooted in the traditions and integrity of the fire service.
When our daughter was diagnosed with an incredibly rare neurological and degenerative disease in 2016 at the age of two, we needed a rescue. She was one of only seven people known to be living with this disease. We immediately activated to find a community beyond the number seven, and urgently drive research leading to treatment and a cure. in 2017 we started a foundation, KIF1A.ORG. Our mission: find more children living with her disease, build a community, and raise funds to urgently support relentless scientists and physicians develop treatment for the seven families and a growing community of parents experiencing the same unknown and terrifying future for their children. That was in 2017. Today, there are many more; hundreds in fact.
The task of nonprofit fundraising to generate awareness for a disease nobody knew about weighed heavy on my shoulders. For seven years of our daughter’s life, and for the final seven years of my father’s life, I traveled away from them to plan events, speak at conferences, and convince scientists to find treatment for our growing community of families with medically complex children.
Being away from our family was a weight I carried on my shoulders. For seven years. Many families, patients and advocates carry the same burden today, and Rescue 7 is here to help.
My goal in starting Rescue 7 is to support families through diagnosis, early community building, and the fight to find treatment. Rescue 7 is here to to help patient advocates spend more time at home with their children AND raise funds to drive research for treatments and cures.
In collaborating with Rescue 7, families spend less time traveling to raise funds for their small but mighty advocacy groups, and scientific endeavors. Through fire department activities and sporting events, the full weight of fundraising will be a little lighter on patients and caregivers. I wish I had more time with my father and daughter for those seven years, but without our collective effort to scour the world for treatment, we wouldn’t have it today.
That’s how Rescue 7 was born: I missed my family. It wasn’t until KIF1A.ORG, identified more families, created research and support systems, and galvanized a remarkable community of leaders that we realized a rising tide truly does lift all boats. Today, seven years after KIF1A.ORG formed, we have a gritty community of nearly 700 families around the world. It is possible, and Rescue 7 wants to help.
My hope is that Rescue 7 takes some of the heavy burden away from today’s caregivers so they are home for those precious family moments that I experienced on FaceTime running between airports not knowing where the next research dollar was coming from.
Together with fire departments around the world, Rescue 7 develops programs to make fundraising less daunting for families, patients, caregivers, and advocacy groups. Time is as much our enemy as nature, and firefighters get things done. Parents and advocates shouldn’t spend epic amounts of time away from home executing fundraisers. With our team of firefighters and advocates we host unique, exciting events. 100% of funds raised go directly to patient advocacy groups and communities that call for a rescue.
We bring big trucks for the kids and teach families life-saving skills. Our mission is to support community endeavors that bring smiles to children with catastrophic neurological diseases and cancer. And it all started with the number seven. Join us.
Stay Safe,
Luke Rosen
